Thursday, January 6, 2011

CT Scans & An Update

I got copies of Addy's CT scans at a follow-up appointment today. This was her first scan, from September. Note the off-center soft spot at the top of her head.

Another view of the scan. Note the line running down the side of her head. That is what an OPEN suture looks like.

And this is the right side of her head. Notice you can't even see the suture line. It is completely closed up. (The little dent-like mark on her forehead is just a marker, not actually part of her skull.)

And this is what her scan looked like a couple days after surgery. Kinda freaky looking, but amazing!

Left side.

Right side. The patchy spot is where the surgeon filled in an open area with a bone paste. Pretty fascinating if you ask me!

And here's what she looks like from the outside, 4 weeks post-op (last week), sporting a new hat from her aunt. :-)

Addy is doing great! Dr. M seemed particularly pleased with how Addy's surgery turned out. He said her head is put together a lot more smoothly than a lot of kids he's done. I definitely think she looks great, and I anticipate it will only get better! Now if we could just figure out how to avoid eye surgery... :-)


Judy said...

That's SO great! Thanks for the update! she sure looks good for just having major surgery!

shepherdess said...

Just found your blog... I am very familiar with this condition and enjoyed reading your journey as you learned and went through the surgery. My husband's family has the genetic version of this, and my husband still wears the scars from two surgeries proudly. His father and brother both had the craniostenosis, and our niece has a mild form of it. Our nephew just had his surgery last year, and each of our future children will have a 50/50 chance of having the problem. Each child truly is fearfully and wonderfully made, and I love the "handcrafted" shirts available at Craniokids CafePress store.

Anonymous said...

I have the same problem of baby boy just of 10 days.
His from both suture close.
We are very in tension have you any suggestion and if we go for surgery its safe and which age its better.

Jessica said...

Anonymous: I'm so sorry you are having to go through this. :-( If you read through my blog, you will see that we did decide that the craniovault reconstruction (CVR) was the best choice for our daughter, and was safe. She is now 2 1/2 and doing very well. Most doctors like to do this sort of surgery between 6 and 12 months. I found a lot of help through a network called There is a support forum with lots of knowledgeable moms and dads of cranio kids who may be able to direct you to more helpful information as to which doctor you might want to choose and things like that.

Hope that helps. God bless!